Cystic Fibrosis is complex, multi-faceted genetic disease found in about 30,000 people in the US. The Cystic Fibrosis Foundation recently celebrated 65 years of working to learn more about the disease, helping those with the disease lead better and longer lives, and tirelessly looking for a cure. This work has resulted in a much better understanding of how to help those that suffer with the disease, multiple types of treatments and resources to allow caregivers, patients and the general public a better understanding of what the disease is, and where to get help.
Facing the 65 year milestone of fulfilling their mission to not rest until a cure is found, CFF reached out to us to help them create a place where the wealth of information and resources could be available to anyone that needs it. Our team has experience helping organizations like CFF reach out to the greater community in order to share their work, but this project provided new challenges due to the complexity of the disease and volume of information they had to share.
The fact that there are many manifestations of CF, and so many treatments and so much information to be shared forced us to look for a simplified presentation that would give users clear and easy paths to follow in order to find whatever they need or want. Layered on top of this was also the recent announcement of a “$500M Path to a Cure” initiative to encourage the acceleration of the search for a cure. This exciting announcement was just another building block to be included.
As is quoted on the CFF site, “The journey to end cystic fibrosis isn’t a straight line. It is an evolving map with many paths and unique challenges. It requires an ambitious research agenda to accelerate treatments and drug development for the underlying cause of the disease and ultimately deliver a cure.” The same was true in our approach to helping to develop this community for CFF.